Aulton is still doing incredibly well with his night splints, so much so that we have started to put him in his new taller orthotics for half days. I don't really like them because people stare at them and it is so much more difficult to get him in and out of carts. He falls more frequently and tires more easily. However, they are working. He is walking with flat feet more often, even when they aren't on. I still haven't sent him to school with them because I know they are uncomfortable and sometimes his teachers don't read his cues as quickly as I can, which is understandable given the amount of time they spend with him compared to the amount of time I do.
His slee
ping problems have returned and we went to see a pulmonologist last week. As soon as insurance approves the doctor's recommended sleep study, we will get it scheduled. The doctor believes Aulton has something called periodic limb movement (PLM). It's similar to restless leg syndrome, but can happen in a person's arms and other muscles. I have read about it and this explanation seems very probable. The sleep study will rule out other things that could be causing his night waking. If it is PLM, no one is sure what steps we will take from the diagnosis. There are teenages with CMMD who suffer from PLM and take medication, however the medication is too strong for a child. So, we will pray that if this is the diagnosis, his doctors will be able to find something to help him get more rest.
No comments:
Post a Comment