Days 6, 7 & 8 - Injections

There's no place like home.

I enjoyed being home this weekend. I was especially lucky to get to spend three days home before returned to the trial due to Labor Day. Usually, participants have the 2 day weekend and have to return on Monday, so I'm thankful for the extra day I had with my family. We didn't do anything remarkable, except spend lots of time together and my kids were very interested in cuddling with me . I made sure they each got turns spending time sitting on my lap by themselves.

I'm also grateful that I don't have to pay for anything here - hooray big pharmaceutical companies. The Marriott I'm staying in is quite nice, but all I did there was sleep and shower. I was there just under 9 hours. I would be pretty unhappy paying $234 for a room that I didn't even turn on the TV in.

I wasn't in much pain over the weekend. My arm hurt all day Friday (after the injection and some on Saturday). I had a weird reaction, where the site just turned all splotchy red and white. That lasted for several days.



Painful injections today, despite ice
for numbing before and after


I'm got the injections on the other side of my stomach today. I guess I'm just going to rotate (abdomen, thighs, tricep, repeat) because no site is better than another.

The shots hurt more than the last time I got them in my stomach. It took about 19 minutes for the stinging to subside. The ice is supposed to help, but I'm not finding any difference.

Dr. Johnson did a physical before I got the injections. He is interested in my reactions, since each site has had a different type of response to the drug (or placebo).

I wish I could say I'm finding a big difference in my muscles, but so far I'm not. During my physical, I have to open and close my hands rapidly. The first time, there was no problem with myotonia at all. It appeared as if I had normal hands with no muscle issues. Dr. Johnson was impressed and asked me to it again, but it was a fluke and the myotonia came right back. He joked that I had practiced. I didn't so this may be a good sign. It's so hard to tell.

I wish I had more to report, but I'm happy to be heading back in a little bit. I will be back next week.